World Craniofacial Foundation

GRACE
Home: Ndola, Zambia
Date of Birth: 12-20-2007
Diagnosis: Severe hypertelorism with facial cleft

Grace is a 3-year, 9-month old girl who was referred to the World Craniofacial Foundation by Goran Jovic, MD, in Fall 2008. Dr. Jovic is the Director of Interplast Surgical Outreach Center in Lusaka, the capital of Zambia. He is the only plastic and reconstructive surgeon in Zambia, a country of more than 11 million people, where 73 percent of the citizens live below the poverty level.

Because of the severity of Grace's condition, Dr. Jovic cannot treat her in Zambia. In 2009, he arranged for a CT scan to be conducted and, at WCF recommendation, a CD of CT results was sent to Medical Modeling, Inc. Andy Christensen, president of Medical Modeling, donated a three-dimensional model of Grace's skull, which can be used in planning reconstructive surgery for Grace. Dr. Kenneth Salyer, who was consulted regarding Grace's surgery, has advised that surgery be delayed until Grace was 3-5 years old to allow for more bone development.

Grace is the only child of her parents. The Kabelengas live in an extended family of 7 in Ndola, a city of 375,000 people, 250 miles from Lusaka. Her father is a registered nurse and midwife, who serves as a clinical instructor at the Ndola Central Hospital Schools of Nursing and Midwifery. Grace's mother works as a lab technologist for the Tropical Diseases Research Centre (TDRC). Family income is about $990 (USD) per month. Dr. Jovic has spoken highly of Grace's mother, stating:

"Mother is extremely caring and loving. Child is well looked after by mother and I told her that doctors in US will try to help the child."

Due to her condition, Grace has had some difficulty eating and she has been treated for anemia because of this. Otherwise, she appears to be in good health and is developing normally, according to her parents. The father adds that Grace's appearance has led to harassment and discrimination from others. He says:

"I am sure you understand what we have been going through--especially intimidation, stigma, being laughing stocks, just to mention a few. Had it not been for the grace of God and so much encouraging people like your team, we would be so much devastated by now."

Grace remains a happy child, who enjoys dancing to gospel music and praise songs, and Mr. Kabelenga comments:

"We are still trusting God she will one day indeed dance to the glory
of God and testify about what God has done for her following her successful operation we [are] believing God for."

Winifred Rutenbar
WCF Family Care Coordinator
November 14, 2011

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102
SPONSORS

$125,139
DONATED OF $250,000 GOAL

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UPDATE	SPONSOR	DONATION
11/01/11	Park Foundation	$35,000
11/01/11	South African Airlines	$4,200
11/16/11	Barbara White	$1,000
11/16/11	Winifred Rutenbar	$350
11/16/11	Anonymous	$2,400
12/15/11	Susan KUHLO	$25
12/15/11	AE SOOK OH	$25
12/19/11	Pat Frye	$20
12/19/11	Sondra and Jimmy Smith	$25
12/19/11	Ashlee and Tmothy Howard	$50
12/19/11	Rosemary and Paul Siebert	$25
12/19/11	Jane and Gene Hoffman	$50
12/19/11	Nancy Darley	$50
12/19/11	Mr and Mrs W L Hughes	$150
12/19/11	Charlotte and Bryan Keever	$50
12/19/11	Tina Filipski	$100
12/19/11	Nedra and Charles Hyde	$100
12/19/11	Cathrine and Odis Simons	$10
12/19/11	Belinda Casey	$50
12/21/11	Bernadine and Chester Furmanski	$50
12/21/11	Jill Willette	$100
12/21/11	Harold Lewis	$50
12/21/11	Ann and Donald Lewis	$50
12/21/11	Fran and Gary Russell	$50
12/21/11	Katherine McKinley	$50
12/21/11	Melinda Fisher	$200
12/23/11	Yodvadee Hudak and Julian Nunez	$10
12/23/11	Emma Tinney	$50
12/23/11	Eva Jo Lucas	$40
12/23/11	Victoria and Curtis Kockler	$100
12/23/11	Lissa Malley	$25
12/23/11	Irma and Roberto Benavides	$15
12/23/11	Josephine and Thomas Fulller	$25
12/23/11	Gatewood Hawkins Foundation	$1,500
12/27/11	Angela Hipp	$25
12/27/11	Barbara D'Agostino	$150
12/27/11	Catherine and Joseph Maderak	$20
12/27/11	Donna German	$50
12/27/11	Kathleen and Charles Ramsey	$100
12/27/11	Leigh and Hart Green	$1,000
12/27/11	Jane and Michael Rix	$35
12/27/11	Lori and Scott Stevens	$1,000
12/27/11	Norman Kubnick	$100
12/27/11	Rochelle Packard	$50
12/27/11	Stephanie Lea O'Brien	$25
12/27/11	Susanna and Brad Drollinger	$25
12/29/11	Alan Darver	$150
12/29/11	Barbara Abramson	$25
12/29/11	Bruce MacLeish	$200
12/29/11	Carroll Beringer	$25
12/29/11	David Smyre	$1
12/29/11	Dr. and Mrs. Glen C. Hutchison	$50
12/29/11	Jacob Makkappallil	$50
12/29/11	Linda and Mariano Silva	$20
12/29/11	RAE Storage Battery Company	$75
12/29/11	Ramona and Hobart Akin	$500
12/29/11	Joan and Richard Magnani	$50
12/30/11	Luci and Ken Salyer	$1,000
12/31/11	Alfred Anonetti, MD	$100
12/31/11	Christine Goulart	$20
12/31/11	Elizabeth Harper	$100
12/31/11	Dennis and Garrett Persons	$100
12/31/11	Rosemary and Isaac Peng	$50
12/31/11	Jacob Samkoff	$35
12/31/11	Joe McMurray	$100
12/31/11	M. Kathryne and Patrick O'Donnell	$25
12/31/11	Marceline and Roland St. Louis	$40
12/31/11	Kimberly and Matthew Osburn	$750
12/31/11	Melinda and Mike Burns	$100
12/31/11	Marva Rae and Philip Jorgensen	$30
12/31/11	Stephanie and Brent Bumgardner	$100
01/12/12	Amalie and Bobby Underwood	$25
01/12/12	Gretchen and Douglas Davies	$100
01/12/12	Mary Yocco	$25
01/12/12	Rose Mary and Paul Jackson	$200
01/12/12	Shirley Brown	$25
01/12/12	Tonya and Stephen Willardson	$50
01/12/12	SND Energy Company	$1,500
01/31/12	Jan and Robert J. Reilly	$20
01/31/12	Mary and Kelly Longgrear	$10
02/02/12	Melva P. Roland	$50
02/07/12	Carolyn and William E. Kashman	$10
02/07/12	Lynn and Samuel Berkowitz	$50
02/07/12	Sandy and Joe Hochman	$25
02/14/12	Dr and Mrs. Bill Newnan	$35
02/14/12	Lynise E Keller	$18
02/14/12	Mary S Reyes	$50
02/14/12	Rick Etzel	$75
02/23/12	First Hand Foundation	$9,000
02/27/12	Ray Tye Medical Aid Foundation	$35,000
03/01/12	Giving Hope World Wide Foundation	$25,000
04/05/12	Mar Ann W. Bryant	$50
04/13/12	Mar Jenifer Gilbert	$100
04/13/12	Lisa and Mariano Marin	$50
04/13/12	Peggy Navarre	$250
04/13/12	Vicki and Don Henson	$50
04/24/12	Apr Barbara D'Agostino	$100
04/24/12	Cynthia and Jere Gilbert	$50
05/22/12	Christopher Rapp	$100
	Xochitl Lara	$300
	Kara Driver	$50
	Doug Canfield	$500

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